Her white blood count was low, she had a distended stomach and x-rays showed there was something wrong with her bowel. After being transported across Kansas City to a different hospital, and many tests later, we still had no answers. At just a week old, our newborn daughter had surgery where her intestinal organs were removed from her body and examined. This surgery provided the answer that we were not expecting and as parents you never want to hear. Olivia Jean Logan more than likely has a lifelong genetic disorder, Cystic Fibrosis. 

The amount of strength this little girl had during her first few months of life is incredible. She had two surgeries, was fed through a NG tube, had countless sticks of needles, had two blood transfusions, spent time on a ventilator, spent a month with an ileostomy bag, all the while keeping a smile on her face and making sure the NICU staff knew she had the strongest lungs. 

Positivity

After her official diagnosis of Cystic Fibrosis, we had to consciously make the decision to keep a positive outlook and not let this disorder disrupt our life with our daughter. 

Throughout the first year of Olivia’s life, we have had to overcome financial, emotional, mental, and physical hardships. But the one thing that has kept us going is her! Staying positive for her! Olivia’s free spirit and happy go lucky attitude helps keep our outlook positive and our minds on her bright future!”